Chase is doing well and is now almost 2 months old. He is requiring a lot of maintenance, but I am really enjoying caring for him. There was supposed to be a home nurse coming every other day, but we've only seen her once! I kind of prefer to do it myself anyway.
He still has his ostomy bag which is simply a pain. The ostomy bag holds all of his waste. He "goes" out of his belly right now until his intestine is reconnected. We will both be glad when it is gone! He is on his TPN (Total Parenteral Nutrition. A substance that is given intravenously and which supplies 99.9% of a person’s nutritional needs. This supplies nutrition until the he can begin to tolerate food by mouth) for 22 hours a day. I cherish the 2 hours that he is off, when he is "cordless". I can hold him more freely and take his out with out having to lug along his big TPN case. We don't know yet how much longer he will need to be on, but he is taking a little bit of milk by mouth every three hours. He is on a prescription formula and will need to remain on that until his first birthday.
He is scheduled for 2 more surgeries in the next few months.
These are his needed supplies...
I have to replace his dressing on his tube every other day, I change his ostomy bag about every 4 hours, feed him by mouth every 3 hours, give him his vitamins through his tube every 22 hours and take off TPN every 22 hours. I keep this info written down, otherwise I get it all mixed up!
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